Life as a Spectator Sport

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Sunday, May 29, 2005

A silver lining, maybe

I'm no Pollyanna, but I can usually find something to be thankful for in any situation. I realized last night, as I was cleaning the kitchen, that I'd been doing a lot less cleaning lately than usual. With Nick gone, and Clarence no longer even eating in the kitchen, much less preparing food, it now stays clean. Before, I was constantly scrubbing the floor in front of the counters to pick up food Clarence had dropped and to mop up his sticky spills. His whole end of the table had to be wiped down after every meal, and the floor under and around his chair scrubbed, as you would have to do for any toddler. Either he or Nick was constantly fixing some snack, so the countertops were always littered with bread crumbs or beverage spills, and the quantity of dirty dishes was astonishing. I could leave the kitchen sparkling clean in the morning, every dish washed and put away, and come home that night to find it looking as though no one had cleaned or washed dishes in a week, a fact that Shelley was careful to point out every time she was home. So there is that one bright spot.

The mystery of Nick and Mike's whereabouts has been cleared up—Nike finally returned my call to his cell phone. It seems he had to go back to Ohio to take care of some unfinished business. They will be back home tonight, he said, and would be willing to come over Sunday to help with the planting. Come early, I said, and I'll feed you breakfast.

We're back tonight after another truly underwhelming day of three inspections. The best I can say is that these three were the only ones left in that particular area. If I'd been by myself, I would have gone on to Petersburg for a start on the six inspections I have to do there, but it was five o'clock by the time we left the third store and I was exhausted.

What I do for Clarence is no more than many other caregivers have to deal with. And the physical labor itself is not excessive (though my back is beginning to hurt from hauling him to his feet twenty-five times a day). What I didn't know about providing this level of care for another person is that sense of living two people's lives at once. Every aspect of the other person's life becomes your own. You spend as much time administering medications as if you were taking them yourself, as much time tending to his dressing and undressing, bathing, defecating and hand washing as if you were doing all those things for yourself. And of course, in between and alongside doing those services for the other person, you do still have to take care of yourself. I'm fortunate that I take no medications myself, that I have no physical disability of my own to contend with on top of caring for Clarence. But it is still an emotional and psychological drag, the feeling at the end of the day that you've had two days in a single 24-hour period.

So now it's almost one in the morning and I'm sitting at the computer copying pictures off the camera instead of sleeping. That is the other price of total personal care of another person: you work through your exhaustion, because you have to, and then you can't get to sleep yourself.

But I have tomorrow and Monday off, and I'm going to let Nick and Mike do just as much of the work as they are willing to do.
posted by Liz @ 12:02 AM     |


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